Huntington’s Disease Clinical Research Congress 2025 – Day 1
HDBuzz is attending the first Huntington’s Disease (HD) Clinical Research Congress in Nashville, Tennessee, organized by the Huntington Study Group (HSG) and CHDI Foundation.
Day 1: HD Community Research Day
The conference features hundreds of scientists, doctors, and industry representatives discussing HD clinical research and care, with a focus on topics relevant to families.
Demystifying Clinical Trials
The first session was an interview-style panel with Arik Johnson, Chief Mission Officer at HDSA, speaking with Dr. Alexander Dalrymple, Dr. Daniel Claassen, and Frances Saldana, an HD advocate.
The panel aimed to explain elements of a study, such as protocols, endpoints, and the experience of participation.
- Dr. Alexander Dalrymple, neurologist at UVA
- Dr. Daniel Claassen, CEO of HSG
- Frances Saldana, HD advocate and President Emeritus of HDCare
Author's summary: Huntington's Disease Clinical Research Congress 2025 discusses latest research and care.